Next Meeting
RUSP Roundtable VII is scheduled for Wednesday, November 1st, 2023
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NIH Rare Disease Day 2017 Poster
You can download a poster presented at the NIH’s 2017 Rare Disease Day event here: NIH RDD – updated Feb 2017
Inaugural Attendees
The inaugural RUSP Roundtable in August 2015 convened 30 newborn screening (NBS) opinion leaders from academia, governmental agencies, clinical and social research, public health, private industry, and patient advocacy in a unique, open, independent forum to speak with candor about current newborn screening challenges, concerns, and developments with an eye toward the future of NBS. …