RUSP Roundtable VII is tentatively scheduled for Wednesday, November 1st, 2023. We will meet only if the ACHDNC meets in person.

Potential discussion topics might include 2 or 3 of the following:

  • Dried blood spot public policy and public relation challenges
  • Reflecting on recent year’s changes in Committee’s Nomination requirements
  • Challenges & opportunities in timely consolidation of NBS screening counts by disorder
  • ELSI issues with deferred therapies & later-onset monitoring, and long term follow-up
  • Long term Improvement of the quality of sequencing as 2nd or 3rd tier in NBS>
  • We are always open to suggestions for discussion topics

If you are interested in being kept updated on the RUSP Roundtable and/or participating, please contact Dean Suhr, President, MLD Foundation +1 503-656-4808 or