RUSP Roundtable VII is tentatively scheduled for
Potential discussion topics might include 2 or 3 of the following:
- Dried blood spot public policy and public relation challenges
- Reflecting on recent year’s changes in Committee’s Nomination requirements
- Challenges & opportunities in timely consolidation of NBS screening counts by disorder
- ELSI issues with deferred therapies & later-onset monitoring, and long term follow-up
- Long term Improvement of the quality of sequencing as 2nd or 3rd tier in NBS>
- We are always open to suggestions for discussion topics
If you are interested in being kept updated on the RUSP Roundtable and/or participating, please contact Dean Suhr, President, MLD Foundation +1 503-656-4808 or RUSProundtable@MLDfoundation.org