Welcome to the RUSP Roundtable
Perspectives on Newborn Screening
The goal of the RUSP Roundtable is to …
Create an open well-informed space to share perspectives and insights from key experts in the NBS space,
• expand the common knowledge base,
• and identify opportunities for both coalition building and collaborations across sectors to innovate and accelerate programs to make NBS more robust and equitable.
Next Meeting
NIH Rare Disease Day 2017 Poster
You can download a poster presented at the NIH’s 2017 Rare Disease Day event here: NIH…
Inaugural Attendees
The inaugural RUSP Roundtable in August 2015 convened 30 newborn screening (NBS) opinion leaders from…
The project you have helped facilitate is critically important to NBS! There is the opportunity for the RUSP Roundtable meetings to assemble information and construct a framework (as a shared understanding) for helping to guide NBS decision making that may not be possible in other settings. I see the potential for these meetings to help guide NBS going forward into the future [as] the current decision making processes are leading to an unsustainable future.
— US public health newborn screening lab director