RUSP Roundtable™ VIII is scheduled for Wednesday, August 7th, 2024 at the Hilton Rockville, just before the quarterly ACHDNC in-person meeting. If you have interest in attending, being kept updated, or want to propose ideas for discussion topics please contact Dean Suhr, President, MLD Foundation +1 503-656-4808 or [email protected]
You can download a poster presented at the NIH’s 2017 Rare Disease Day event here: NIH RDD – updated Feb 2017
NIH Rare Disease Day 2017 Poster Read More »
The inaugural RUSP Roundtable in August 2015 convened 30 newborn screening (NBS) opinion leaders from academia, governmental agencies, clinical and social research, public health, private industry, and patient advocacy in a unique, open, independent forum to speak with candor about current newborn screening challenges, concerns, and developments with an eye toward the future of NBS.
Inaugural Attendees Read More »