RUSP Roundtable VII is scheduled for Monday, November 8th, 2021.

Potential discussion topics include:
• Challenges & opportunities in timely consolidation of NBS screening counts by disorder
• ELSI issues with deferred therapies & later-onset monitoring, and long term follow-up
• Unexpected disasters – planning outside the box
* Long term Improvement of the quality of sequencing as 2nd or 3rd tier in NBS

This meeting will be a shortened virtual gathering instead of our historical “piggyback” on an in-person ACHDNC meeting. We look forward to the COVID pandemic being brought under control so we can resume gathering in person.

You can see the current ACHDNC meeting dates here.

If you are interested in being kept updated on the RUSP Roundtable and/or participating, please contact Dean Suhr, President, MLD Foundation +1 503-656-4808 or